Definition of quality registers in Sweden
A national quality registry contains individualised data concerning patient problems, medical interventions, and outcomes after treatment; within all healthcare production. It is annually monitored and approved for financial support by an Executive Committee.
The vision for the quality registries and the competence centres is to constitute an over-all knowledge system that is actively used on all levels for continuous learning, quality improvement and management of all healthcare services.
A catalogue that describes the National Healthcare Quality Registries in Sweden was published 2007. The catalouge also describes the organization of the Quality Registries and the Swedish healthcare system. A new catalouge was published in sweden 2010 but it is only in swedish.
Download the catalouge 2007 in pdf in english
Download the catalouge 2010 in pdf in swedish
Eight competence centers for the National Quality Registries has been established. In a competence center, several registries share the costs for staff and systems that a single registry could not bear. Hence, a continued development of the registries can be assured although the system folows a decentralized model, i.e. each register is governed by a proffessonal collaboration.
Competence centers aim to promote the development of new registries, create synergy effects by collaboration among registries (eg, in technical operations, analytical work, and use of registry data to support clinical quality improvement), and helping to make registry data beneficial for different users.
Uppsala Clinical Research Center, UCR
Registercentrum Västra Götaland
QRC, Registercentrum Stockholm
Below you find a list of the registries that have a website in english.